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Review article

Decision Aids for Patients

Dtsch Arztebl Int 2012; 109(22-23): 401-8. DOI: 10.3238/arztebl.2012.0401

Lenz, M; Buhse, S; Kasper, J; Kupfer, R; Richter, T; Mühlhauser, I

1. Mühlhauser I, Meyer G, Steckelberg A: Patienten wollen mitentscheiden, doch Informationsbasis und Strukturen fehlen. ZFA 2010; 86: 412–7.
2. Edwards A, Elwyn G: Shared decision making in health care: achieving evidence based patient choice, 2 e. Oxford: Oxford University Press 2009.
3. Stacey D, Bennett CL, Barry MJ, et al.: Decision aids for people facing health treatment or screening decisions. Cochrane Database of Systematic Reviews 2011; CD001431. MEDLINE
4. Bunge M, Mühlhauser I, Steckelberg A: What constitutes evidence-based patient information? Overview of discussed criteria. Patient Educ Couns 2010; 78: 316–28. CrossRef MEDLINE
5. Charles C, Gafni A, Freeman E: Implementing shared decision making and treatment decision aids: A cautionary tale. Psicooncologia 2010; 7: 243–55.
6. Charles C, Gafni A, Whelan T: Shared decision-making in the medical encounter: what does it mean? (Or it takes at least two to tango). SocSciMed 1997; 44: 681–92. CrossRef
7. Strauss S, Glaziou P, Richardson WS, Haynes RB: Evidence-based medicine: how to practice and teach it. 4th edition. Edinburgh: Churchill Livingstone 2010.
8. International Patient Decision Aid Standards (IPDAS)Collaboration: International Patient Decision Aid Standards. http://ipdas.ohri.ca/.
9.Lenz M, Kasper J: MATRIX – development and feasibility of a guide for quality assessment of patient decision aids. GMS Psychosoc Med 2007; 4: Doc10. MEDLINE PubMed Central
10. Craig P, Dieppe P, Macintyre S, Michie S, Nazareth I, Petticrew M: Developing and evaluating complex interventions: new guidance. UK Medical Research Council 2008. www.mrc.ac.uk/complexinterventionsguidance
11. Steckelberg A, Berger B, Köpke S, Heesen C, Mühlhauser I: Kriterien für evidenzbasierte Patienteninformationen. Z Arztl Fortbild Qualitatssich 2005; 99: 343–51. MEDLINE
12. Trevena LJ, Davey HM, Barratt A, Butow P, Caldwell P: A systematic review on communicating with patients about evidence. Journal of Evaluation in Clinical Practice 2006; 12: 13–23. CrossRef MEDLINE
13. General Medical Council: Consent: patient and doctors making decisions together. www.gmc-uk.org/guidance/ethical_guidance/consent_guidance/Consent_guidance.pdf.
14. Elwyn G, O’Connor AM, Bennett C, et al.: Assessing the quality of decision support technologies using the International Patient Decision Aid Standards instrument (IPDASi). PLoS ONE 2009; 4: e4705. CrossRef MEDLINE PubMed Central
15. Charvet-Berard AI, Chopard P, Perneger TV: Measuring quality of patient information documents with an expanded EQIP scale. Patient Education & Counseling 2008; 70: 407–11. CrossRef MEDLINE
16. Köpke S, Kasper J, Mühlhauser I, Nübling M, Heesen C: Patient education program to enhance decision autonomy in multiple sclerosis relapse management: A randomized-controlled trial. Multiple Sclerosis 2009; 15: 96–104. CrossRef MEDLINE
17. Köpke M, Mühlhauser I: Decision aids in multiple sclerosis. In: Edwards A, Elwyn G, (eds): Shared decision making in health care: achieving evidence based patient choice, 2e. Oxford: Oxford University Press; 2009: 257–61.
18. Feldman-Stewart D, Brennenstuhl S, McIssac K, et al.: A systematic review of information in decision aids. Health Expect 2007; 10: 46–61. CrossRef MEDLINE
19.Köpke S, Berger B, Steckelberg A, Meyer G: In Deutschland gebräuchliche Bewertungsinstrumente für Patienteninformationen – eine kritische Analyse. Z Arztl Fortbild Qualitatssich 2005; 99: 353–7. MEDLINE
20. Lenz M, Kasper J, Mühlhauser I: Searching for diabetes decision aids and related background information. DiabetMed 2006; 23: 912–6. CrossRef MEDLINE
21. Lenz M, Steckelberg A, Richter B, Mühlhauser I: Meta-analysis does not allow appraisal of complex interventions in diabetes and hypertension self-management: a methodological review. Diabetologia 2007; 50: 1375–83. CrossRef MEDLINE
22. Warsi A, Wang PS, LaValley MP, Avorn J, Solomon DH: Self-management education programs in chronic disease: a systematic review and methodological critique of the literature. ArchInternMed 2004; 164: 1641–9. CrossRef MEDLINE
23. Loh A, Simon D, Wills CE, Kriston L, Niebling W, Harter M: The effects of a shared decision-making intervention in primary care of depression: A cluster-randomized controlled trial. Patient Education and Counseling 2007; 67 (3 SPEC. ISS.): 324–32.
24. Steckelberg A: Projekt: Entwicklung und Pilotierung einer Leitlinie zur Erstellung und Präsentation von evidenzbasierter Patienteninformation (EBPI). www.chemie.uni-hamburg.de/igtw/Gesundheit/projekte/patientenleitlinie.html
25. Steckelberg A, Hülfenhaus C, Haastert B, Mühlhauser I: Effect of evidence based risk information on „informed choice“ in colorectal cancer screening: Randomised controlled trial. BMJ 2011; 342: d3193; doi:10.1136/bmj.d3193. CrossRef MEDLINE PubMed Central
e1. Kasper J, Köpke S, Mühlhauser I, Heesen C: Evidence-based patient information about treatment of multiple sclerosis – a phase one study on comprehension and emotional responses. Patient Education & Counseling 2006; 62: 56–63. CrossRef MEDLINE
e2. Köpke S, Heesen C, Kasper J, Mühlhauser I: Steroid treatment for relapses in multiple sclerosis – the evidence urges shared decision-making. Acta Neurologica Scandinavica 2004; 110: 1–5. CrossRef MEDLINE
e3. Deutsche Gesellschaft für Neurologie: Diagnostik und Therapie der Multiplen Sklerose. Leitlinien für Diagnostik und Therapie in der Neurologie; 4th revised edition 2008. http://www.awmf.org/uploads/tx_szleitlinien/030-050_S1_Multiple_Sklerose__Diagnostik_und_Therapie_10-2008_10-2013.pdf.
e4.Köpke S, Richter T, Kasper J, Mühlhauser I, Flachenecker P, Heesen C: Implementation of a patient education program on multiple sclerosis relapse management. Patient Education & Counseling 2012; 86: 91–7. CrossRef MEDLINE
e5. Health On the Net Foundation (HON): www.hon.ch
e6. DISCERN: www.discern.de
e7. Schwartz LM, Woloshin S, Welch HG: Using a drug facts box to communicate drug benefits and harms: two randomized trials. Annals of Internal Medicine 2009; 150: 516–27.
e8. Köpke S: Evidenz-basierte Patienteninformation und partizipative Entscheidungsfindung bei Multipler Sklerose. Dissertation, Universität Hamburg. http://ediss.sub.uni-hamburg.de/frontdoor.php? source_opus=3352.
e9. Vodermaier A, Caspari C, Koehm J, Kahlert S, Ditsch N, Untch M: Contextual factors in shared decision making: A randomised controlled trial in women with a strong suspicion of breast cancer. British Journal of Cancer 2009; 100: 590–7. CrossRef MEDLINE PubMed Central
e10. Vodermaier A, Caspari C, Wang L, Koehm J, Ditsch N, Untch M: How and for whom are decision aids effective? Long-term psychological outcome of a randomized controlled trial in women with newly diagnosed breast cancer. Health Psychology 2011; 30: 12–9. CrossRef MEDLINE
e11. Wilhelm D, Gillen S, Wirnhier H, Kranzfelder M, Schneider A, Schmidt A, et al.: Extended preoperative patient education using a multimedia DVD-impact on patients receiving a laparoscopic cholecystectomy: a randomised controlled trial. Langenbecks Archives of Surgery 2009; 394: 227–33. MEDLINE
e12. Genz J, Haastert B, Meyer G, Steckelberg A, Müller H, Verheyen F, et al.: Blood glucose testing and primary prevention of diabetes mellitus type 2 – evaluation of the effect of evidence based patient information. BMC Public Health 2010; 10: 15. MEDLINE
e13. Krones T, Keller H, Sönnichsen A, Sadowski EM, Baum E, Wegscheider K, et al.: Absolute cardiovascular disease risk and shared decision making in primary care: a randomized controlled trial. Annals of Family Medicine 2008; 6: 218–27. MEDLINE
e14. Krones T, Keller H, Becker A, Sönnichsen A, Baum E, Donner-Banzhoff N: The theory of planned behaviour in a randomized trial of a decision aid on cardiovascular risk prevention. Patient Education and Counseling 2009; 78: 169–76. MEDLINE
e15. Kasper J, Köpke S, Mühlhauser I, Nübling M, Heesen C: Informed shared decision making about immunotherapy for patients with multiple sclerosis (ISDIMS): A randomized controlled trial. European Journal of Neurology 2008; 15: 1345–52. CrossRef MEDLINE
e16. Bücker B, Butzlaff M, Isfort J, Koneczny N, Vollmar HC, Lange S, et al.: Effect of written patient information on knowledge and function of patients with acute uncomplicated back pain (PIK Study). Gesundheitswesen 2010; 72: e78–88. MEDLINE
e17. Hamann J, Langer B, Winkler V, Busch R, Cohen R, Leucht S, et al.: Shared decision making for in-patients with schizophrenia. Acta Psychiatr Scand 2006; 114: 265–73. MEDLINE
e18.Heesen C, Kasper J, Segal J, Köpke S, Mühlhauser I: Decisional role preferences, risk knowledge and information interests in patients with multiple sclerosis. Multiple Sclerosis 2004; 10: 643–50. CrossRef MEDLINE